Freckmann, Magdalena and Seipp, Alexander and Laaß, Martin Walter and Koletzko, Sibylle and Claßen, Martin and Ballauff, Antje and Peplies, Jenny and Timmer, Antje
(2018)
School-related experience and performance with inflammatory bowel disease: results from a cross-sectional survey in 675 children and their parents.
BMJ open gastroenterology, 5 (1).
e000236.
ISSN 2054-4774
Abstract
Objective We describe school performance and
experience in children with inflammatory bowel
disease (IBD) across Germany and Austria. Predictors
of compromised performance and satisfaction were
evaluated to identify subgroups of increased risk.
Design This cross-sectional analysis was based on
a postal survey in children aged 10–15 with Crohn’s
disease, ulcerative colitis or unclassified IBD and their
families. Multivariate regression analysis was used
to assess influential factors on parental satisfaction
with school, attending advanced secondary education
(ASE), having good marks and having to repeat a class.
Satisfaction was assessed based on the Child Healthcare–
Satisfaction, Utilisation and Needs instrument (possible
range 1.00–5.00).
Results Of 1367 families contacted, 675 participated in
the study (49.4%). Sixty-eight participants (10.2%) had
repeated a year, 312 (46.2%) attended ASE. The median
school satisfaction score was 2.67 (IQR 2.00–3.33). High
socioeconomic status (SES) and region within Germany
were predictive for ASE (OR high SES 8.2, 95% CI 4.7 to
14.2). SES, female sex and region of residence predicted
good marks. Grade retention was associated with an
active disease course (OR 2.7, 95% CI 1.4 to 5.3) and
prolonged periods off school due to IBD (OR 3.9, 95% CI
1.8 to 8.6).
Conclusions A severe disease course impacted on
the risk of grade retention, but not on type of school
attended and school marks. Low satisfaction of parents of
chronically ill children with the school situation underlines
the need for a more interdisciplinary approach in health
services and health services research in young people.
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