Timmer, Antje and Peplies, Jenny and Westphal, Max and Kaltz, Birgit and Ballauff, Antje and Claßen, Martin and Laass, Martin W. and Koletzko, Sibylle (2017) Transition from pediatric to adult medical care: a survey in young persons with inflammatory bowel disease. PLoS one, 12 (5). e0177757. ISSN 1932-6203

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Background Transition to adult health services is a vulnerable phase in young persons with chronic disease. We describe how young persons with inflammatory bowel disease in Germany and Austria experience care during the transitional age, focusing on differences by type of provider (pediatric vs. adult specialist, no specialist). Methods This was a follow up survey in patients previously registered with a pediatric IBD registry. Patients aged 15 to 25 received a postal questionnaire, including a measure of health care experience and satisfaction. Descriptive analyses were stratified by age. Sub-analyses in the 18–20 year age group compared health care experience by type of provider. Determinants of early or late transfer were examined using multinomial logistic regression. Results 619 patients responded to the survey; 605 questionnaires were available for analysis. Usual age of completing transition was 18. Earlier transfer was more common with low parental SES (OR 1.8, 95% CI 0.7 to 4.6), and less common with advanced schooling (OR 0.5, 95% CI 0.2 to 1.2). Structured transition was uncommon. 48% of the respondents had not received any preceding transition advice. Overall satisfaction with IBD care was high, especially with respect to interpersonal aspects, but less so in aspects of continuity of care. Conclusions Despite high overall patient satisfaction, relevant deficiencies in transitional care were documented. Some of these were associated with lower parental social status. Differences in health care satisfaction by type of provider (adult vs. pediatric) were small.

Item Type: Article
Additional Information: Publiziert mit Hilfe des DFG-geförderten Open Access-Publikationsfonds der Carl von Ossietzky Universität Oldenburg.
Subjects: Technology, medicine, applied sciences > Medicine and health
Divisions: Faculty of Medicine and Health Sciences > Department of Public Health and Medical Education
Date Deposited: 28 Sep 2017 10:32
Last Modified: 10 Nov 2017 10:16
URI: https://oops.uni-oldenburg.de/id/eprint/3347
URN: urn:nbn:de:gbv:715-oops-34283
DOI: 10.1371/journal.pone.0177757

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